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In shock after MAC diagnosis

MAC & Bronchiectasis | Last Active: Nov 1, 2022 | Replies (136)

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@annietime

Hi Donna @dc1950, thanks so much for replying, and for all your help. Very glad to hear you have cleared Pseudomonas, for now at least. Here's hoping it will be for a long time!
I will see the pulmonologist tomorrow -- we'll see what meds I'm put on after that. I guess it depends on what meds are most susceptible. Unfortunately I am allergic to penicillins -- had the beginnings of anaphylaxis many years ago. That limits treatment. Also, unfortunately I lost hearing (checked on hearing tests) with aminoglycosides -- and IBS was very bad so I could only take Amikacin for 3 months, maximum. Anyway, we'll see what happens.
I also got it in my sinuses first. Sneezing a lot, then, increasingly more coughing.
Q: Donna, what symptoms did you have when the Pseudomonas went down onto your lungs?
In the past 6 or 7 weeks I have felt like there is more fluid in my chest. And I need the salbutamol puffer much more often.
I really thank you for being there for me Donna,
Annie

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Replies to "Hi Donna @dc1950, thanks so much for replying, and for all your help. Very glad to..."

Hello Annie, How did you make out at the pulmonologist? Interesting that the pseudomonas started in the sinuses for you as well! I started my symptoms after sinus surgery last June. I never felt I recovered from the effects of it. I started getting worse in October. Night sweats, weird dreams, feeling unwell, tired. In November, there were some days I was too tired to get out of bed, coughing a lot and my lungs hurt. Also, had to use albuterol more than usual. I went to see my pulmonologist, submitted a sample and discovered. I hope you get the right meds to help you through this. Take care, Donna