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@sally0526

This information is so appreciated. I’m glad that UroGen was responsive to your inquiry. They have to know that patients are anxious for information about their product (Jelmyto). That someone actually called you back and is facilitating yet another contact is wonderful. Perhaps you can keep us posted via this forum, so others can benefit from the knowledge you are obtaining. Sharing what you find out will truly be a blessing to those of us frustrated by the lack of information about Jelmyto on the internet. I will definitely be checking here for updates. I’m trying to “take it easy” and relax about my situation for the coming weeks leading to my laser treatment. As everybody who has been diagnosed with cancer knows, it takes over your life. I’m trying to take “days off” from thinking about it, but it’s not easy to do as my brain won’t cooperate! But, I will check in here at least daily because it helps me tremendously to have the support and fellowship from others on this journey. Thank you for your efforts to get us info on Jelmyto and I look forward to your posts. 😊

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Replies to "This information is so appreciated. I’m glad that UroGen was responsive to your inquiry. They have..."

Sally...I will for sure continue to post anything I learn that may be of help to you and all that follow our conversations. Like you, this diagnosis and the worr/fear never really disappears from our thoughts. I wish you success in the lazer fulgration proceedure, and possibly your doctor's may recommend the JELMYTO proceedure as an extra insurance proceedure followup. And, I did learn from UROGEN that Jelmyto process can be done more than just once if doctors believe it is necessary. Wish others with our UTUC would participate in this Mayo discussion forum. After I talk to other patients refered to me by UroJen...I will share their results with the treatments.