Hello and welcome, @anna15. Thank you for coming to Connect to seek support. We're happy to have you. Feeling at odds given the variety of concerning sensations, weaknesses and digestive trouble you've been having is understandable. You're on a good path so far of ruling out varying diagnoses. Has your primary care provider been overseeing your tests?
I agree neurology is the next logical step as it does sound related to your central nervous system. After ruling out everything under the sun, I was diagnosed with a central and peripheral nervous system disorder called Central Sensitization Syndrome which can affect much of what you describe if upregulated. I'm not a medical professional, only have my own experiences to go by, but it might be worth gaining knowledge of. CSS typically is process of elimination as there are no tests that prove it.
Here's more from Mayo Clinic's Dr. Sletten on Central Sensitization Syndrome in case you are interested:
You mention anxiety. Do you normally struggle with anxiety? I do not believe anxiety created all of your problems, but as you'll learn from the video, it can be a contributor to symptoms and flares. Have you had any traumatic events prior to July, any surgeries or mounting life stress?
Im curious, what are your symptoms and how do you treat this? I’m worried my neurologist will see my results and say it’s just stress.. I started taking an anxiety medication today so that by the time I see a neurologist I can have an idea if it helped or not. I probably shouldn’t google but everything I google it doesn’t match up with my symptoms.
Im curious, what are your symptoms and how do you treat this? I’m worried my neurologist will see my results and say it’s just stress.. I started taking an anxiety medication today so that by the time I see a neurologist I can have an idea if it helped or not. I probably shouldn’t google but everything I google it doesn’t match up with my symptoms.