← Return to IVIG treatments and staying up-to-date with vaccinations

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@kewp

RE: IVIG: I don’t see your dtr’s diagnosis? Or if there are various treatments available? However, I did have 2 bottles of IVIG in the hospital for ITP (Immune Idiopathic Thrombocytopenia) plus prednisone, as a hospital inpatient in 2008. I’ve been told afterwards, that with IVIG infusions, you need to drink a lot of fluids & it needs to be infused very slowly to prevent kidney damage. By 2010 I was diagnosed with Chronic Kidney Disease, with creatinine rising in 2009, and my nephrologist does not know the cause & said it usually comes with hypertension or diabetes which I don’t have. Dr also ruled out immune kidney by lab test. But Dr did say that in “very rare cases, IVIG can affect the kidney & may result in CKD.” Also, that my ITP x4 episodes, is very inflammatory on the body, but it’s been in remission; so who knows cause of my CKD3. So my story conclusion on IVIG, is just to make sure that the IVIG is administered properly, how much fluid intake; to avoid any possibility of rare kidney side effect from it. (I see many people had IVIG & they don’t mention kidney issue, so I may be a rare case if IVIG affected my kidneys at all). Just something to ask your dtr’s Dr.

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Replies to "RE: IVIG: I don’t see your dtr’s diagnosis? Or if there are various treatments available? However,..."

The diagnosis is MOGAD. It can be monophasic, so it's not always necessary to stay on a preventative. But especially with a 1000:1 titer, I would. High MOG titres do correlate with disease severity. There's a treatment that makes MOG antibodies go away that works in mice. It "should" be available soon. "A noninflammatory mRNA vaccine for treatment of experimental autoimmune encephalomyelitis".

How's your daughter doing?