← Return to Daughter, 45 anaplastic thyroid cancer. Had surgery, chemo, radiation.

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@jpuntasecca

I hope your son’s treatment is successful. I was diagnosed with ATC in February 2022. I had a complete Thyroidectomy and neck dissection at that time and a tracheostomy was done because the tumor was wrapped around the trachea. Unfortunately there was still cancer left after surgery because my surgeon stopped short of doing a laryngectomy. I am extremely grateful for that because i can speak with the use of a passy muir valve. After recovering i underwent radiation and chemo (doxorubicin). The radiation was extremely grueling. The treatment was very successful however. All that was left of the cancer was one lymph node in my neck! I just started taking Dabrafenib and Trametinib as my cancer has the BRAF mutation. I am hopeful those drugs will be successful in treating the small amount of disease that was left after the chemo radiation. I am also hopeful that I’ll be able to have the trach removed as the swelling from the radiation subsides. This whole process has been a rollercoaster of emotions. Unfortunately there isn’t a lot of positive info out there. I just want to offer others in the same situation a ray of hope. Luckily there are treatment options now for this ruthless disease.

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Replies to "I hope your son’s treatment is successful. I was diagnosed with ATC in February 2022. I..."

Omgosh! I thought my daughter had replied to Toby scott with her dates wrong. Your and her situation are nearly identical. She goes for PET scan next week to Mayo. November 7th she will hopefully have the first attempt to stretch her esophagus so she can begin to swallow. Hasn’t swallowed anything since February. Hoping and praying!

How are you doing now?