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Prognosis for Metastasized NET

Neuroendocrine Tumors (NETs) | Last Active: Mar 20 11:16am | Replies (63)

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@colleenyoung

Welcome, @sandy23. The unknowns of cancer are really hard to accept. Treatment decision making and weighing the unexact science of prognosis stats to the individual is almost impossible. If you would like to seek a second opinion, you might wish to contact Mayo Clinic. See info here: http://mayocl.in/1mtmR63

Sandy, it sounds like you may be willing to accept your husband's wish to not pursue further treatment, but that you want a better undertanding of what to expect so that you can prepare. Your research will serve you well, but it may not paint an exact picture of your husband's journey and future.

If you don't know about palliative care, I might suggest reviewing this discussion:
- Palliative Care: What is it? How do I get it? https://connect.mayoclinic.org/discussion/palliative-care-1/

Has palliative care been offered to you and your husband?

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Replies to "Welcome, @sandy23. The unknowns of cancer are really hard to accept. Treatment decision making and weighing..."

Hi Collins, thank you for the response. No, the Dr has not offered palliative care yet. I don't think my husband would even be open to it. Would it even be useful at this point? Will you tell me if my research is correct? Is the cancer in a faster stage of growth at this point? I have been a caregiver to many close family members until they passed and bc of that I'm preparing myself but I also don't want to dwell on the situation. I just don't want to be blindsided.

Hi, is there an option for immunotherapy?