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Anyone out there diagnosed with Pudendal Neuralgia?
Chronic Pain | Last Active: Oct 14 2:50pm | Replies (200)Comment receiving replies
I don't remember the dosage. I do remember that I had to get off of it because of the side effects. I was taking it off label for a daily persistent headache that I still have after 3 yrs/3 months. Side effects are different for everyone though. After my pudenal pain went away I mentioned it to my PT that I had stopped seeing and she said that she had read about anti-seizure medicine helping. She was a pelvic floor PT. What have you got to lose?
Mikayla
Replies to "I don't remember the dosage. I do remember that I had to get off of it..."
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You’re so right. I don’t tolerate drugs well. I’ll be seeing my GP this week. Hopefully he has at least some knowledge and advice to give me regarding specific drugs. So far, I feel completely on my own. Even my pelvic floor physio, with over 20 years experience, I have a sense that she means well, but is sort of feeling her way forward. A kind of less is
more approach to pudendal neuralgia treatment.
Btw, my brother had non stop headaches for 3 years. He started using a 10% cream solution of dicoflenic in a
glaxial base. He no longer has headaches.
I’ll let you know how the Topsmax works out.