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Linear endocrine cells hyperplasia & Autoimmune Gastritis
Neuroendocrine Tumors (NETs) | Last Active: Oct 18, 2022 | Replies (41)Comment receiving replies
Hi,
I have posted before. i believe i talked to theresa. who was helpful supportive and reassuring. but as i get closer to seeing my new GI for the first time i feel nervous and anxious. idont know why and last couple of days i have felt fuller faster, some discomfort. i have been under stress but i never had the antibody testing i was suppose to so i have been pretty much in the dark since june. i did start getting b12 injections, i am seeing a naturpath doc next week and last week started eating gluten and dairy free. idont even really eat that much. my biopsy esults from former GI was linear endrocine cell hyperplasia with the "possibility " of autoimmune gastritis. its been almost impossible to find anyone who had been told the same thing. just looking for someone to talk to. thank you!
Replies to "Hi, I have posted before. i believe i talked to theresa. who was helpful supportive and..."
Anyone else have this? Mine has gotten quite severe and it seems nobody understands it or has even heard of it. Makes it so hard to treat. Anyone else out there have this condition?
Hi @eileenb1022, members share a lot of tips about getting ready to meet a new specialist that you might find helpful in this discussion:
- Your Tips on How to Get Off to the Best Start with a New Specialist https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/
Might it help to keep a journal of your symptoms leading up to your appointment? That will help to put your worry into doing something. Keep it simple. Track the symptoms you're experiencing as well as some notes about what you were doing at the time, time of day or possible triggers. You might notice some patterns that would be helpful.
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I am here! I have basically the same thing, only a bit different. But I also feel alone with all of this. Even docs look at me and tell me this does not exist! hah! I would love to just get with you online and compare stories and see if we can help get each other through this. I will tell you my story if interested. I always feel so lost and alone in this.