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Increasing unrelenting pain - PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Oct 22, 2022 | Replies (32)

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@elizabethjoan

Just an update from my post about the ‘unrelenting pain’.I saw my rheumatologist the day before yesterday. Now I am more confused than ever. He was not pleased that I had increased my prednisone to 25 and was back to the orders that I had to taper as planned although he did concede that I could go slower. He also said I should be experiencing very little pain when decreasing. This seems a conflict to me. I have not had any significant decrease in pain so therefore should not be decreasing.
However he used the ultrasound to examine my groin where the pain and stiffness were. He aspirated a large amount of cloudy fluid which has been sent for culture and then gave me a cortisone shot in the groin for my ‘arthritis of my hip’. I told him I did not have arthritis in the hip…or anywhere else….but he said I did. AND yesterday morning I woke up totally pain and stiffness free…had the best day I have had since May. Wonderful. Of course I did far to much and it came back a bit but I was sure glad to have a good day. No idea what this all means…another chapter in this novel, I guess.

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Replies to "Just an update from my post about the ‘unrelenting pain’.I saw my rheumatologist the day before..."

What a journey! I admire your persistence. Good luck.

I may be in the minority here, but it seems to me that your rheumatologist is being a bit rigid. My PMR only began to improve when my dr increased my dosage to 40mg/day. That is an unusually high dose, but she said that it's not unheard of in particularly severe cases. The minute I started 40mg, the pain went away. I'm hoping to begin a very slow taper soon. My recommendation would be to get a second opinion, if there's another rheumatologist in your area you could see. Best of luck.