@frances007 I've been following this discussion and especially your detailed posts. While I did not personally provide any advice or support I do appreciate that you took the time to thank those of us on Mayo Clinic Connect. Yes, this is what we do best. We listen, we support, we connect with each other and we give advice when it seems warranted. I also find it hard sometimes to advocate for myself but if I don't do that then who will? Not easy at all but just look at the what you've achieved by doing just that.

Please come back and let me know how you progress with your new health care team.