← Return to CRPS - anyone suffering with complex regional pain syndrome

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@jeanniem

I had a neuromuscular ultrasound on my wrists, elbows, and ankles. There were nerve changes but not in proportion with symptoms at the ankle.

Best wishes on your injection. I understand wanting to have your nerves mapped. I have told doctors that I do better when I have vocabulary/pockets.

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Replies to "I had a neuromuscular ultrasound on my wrists, elbows, and ankles. There were nerve changes but..."

Thanks. I had my upper back ultrasound yesterday and he showed me where I slightly compressed discs in the area. It hurts occasionally but CRPS overrides it. Two years with a chiropractor essentially solved the pain. He didn't look thrilled when I said that but I'm in charge of my treatment.

To map the CRPS, he told me that basically all the other doctors were incorrect in a CRPS diagnosis and that I have nerve entrapment. That's when my tone somewhat changed because I have been to top notch hospitals for orthopedics and you're telling me they were all wrong. That's offensive to me, and now he wants to do surgery; not going to happen even if I do have it because playing with CRPS nerves is not a risk I am willing to take. He won't do plasma-rich platelets without releasing the nerve first. What's strange to me is with the lower leg area he didn't examine, only by looking at my lower leg. Either he is the best, or he thinks he is and that's okay but I will not be your guinea pig and risk paralysis if you mess up or are wrong.