Hello! Very naive here about where I have been and how concerned I should be. Maybe someone can direct me as to what groups I should be looking at…?
About 20 years ago, I caught pneumonia walking past anyone smoking and have had so much bronchitis over the years. I was sent to a pulmonary Dr. who discovered small lung tumors but they never said tumors only spots on my lungs. I was monitored every 6 months for 2 years then told nothing was growing.
Fast forward to lots of coughing and never Covid but…like most people bought a finger tip oxygen monitor that kept falling to 85%, I live in Denver, CO. So after a sleep test and Asthma testing and the “walk down the hall test” I had imaging and found more “spots” than earlier in my life. Also got a CPAP with oxygen for night time and found out my Vasal Vagas nerve deregulates my breathing. Next up a Broncoscopy. Was told that I have very slow growing carcinoid tumors…inoperable because of how many. A month of worrying later I had a cancer specialist Dr. tell me I do not HAVE Cancer but there is a 10% chance of having it develop into a syndrome and to watch out for the symptoms she listed.
So I have an Inogen portable low flow pulse oxygen machine to hike or do strenuous exercise and sleep with a constant oxygen connection to my CPAP.
It sounds like I should be doing something more? Or is this just a waiting to see if it develops into something worse? I was also just diagnosed with Anemia at 66 years old and just went thru the endoscopy and swallowing the camera to check my whole GI system. Nothing found so next month I have a Hemotolgy appointment because I need all the oxygen producing cells I can get.
Groups and information to look at please? Ps. I don’t feel bad at all just still have coughing fits some days.