Exercise/stretching doesn’t impact it either. He lifts weights and walks regularly. Nothing seems to make it worse or better. The pain fluctuates in intensity. No genetic testing yet, but I think that may be the next step. We’ve spent thousands of dollars for each doctor to tell us there is “nothing wrong.”

One additional thing that may be unrelated is he tends to lose weight/muscle mass easily. If he doesn’t work out, he loses weight quickly (too bad it works the other way for the majority of us!)