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Low grade ureter and renal pelvis kidney cancer diagnosis.
Kidney Cancer | Last Active: Mar 9, 2023 | Replies (37)Comment receiving replies
I was diagnosed with ureter cancer in July. The hospital said they think I have cancer. I went to a urologist in NJ. He did a cystocopy which was normal I had a positive urine test for cancer and they saw what they believed to be cancer cells in my ureter so he said it was cancer and he needed to remove my kidney, ureter, and bladder. I wasn't given any other options and no other tests where taken. So I then went to a urologist at cooper hospital in NJ, he never examined me and also didn't do any further tests. He too said when there is cancer in the ureter the only option is to remove everything and again wasn't told about any other options. He too said he THINKS its cancer. If all these doctors are saying they THINK, shouldn't they have done frther testing to make sure it is cancer. Hope you can help. Thank you
Replies to "I was diagnosed with ureter cancer in July. The hospital said they think I have cancer...."
Puppealuv...yes . Keep doing research. Get a pathology report and see if you can learn the 'type' and the grade, invasive or non-invasive of any cancer if it is present. A cytology test and more sensitive cytogenetics test might provide the answer to if you have alternative options. The weight of this concern is so difficult to bear...I wish you the best. But, you need to keep digging and reconfirming the data. Remember, being a doctor is just a JOB to many in medicine. They go home at 5pm but you carry the worry and concern personally 24 hours a day. Be sure before you take your next step. Keep us informed.
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My upper tract urothelial cancer was noticed on a CT scan that my primary care (not a urologist) ordered as I was having occasional pain in my left side. The radiologist said it was “a neoplasm” at the very top of my left ureter near my kidney. So, I was referred to a Urologist who looked at my CT scan and said the ONLY WAY TO DIAGNOSE THE NEOPLSM DEFINITIVELY was with a biopsy. So, he did a biopsy which entailed an outpatient procedure where I was put under general anesthesia and he inserted instruments through my urethra , through my bladder, and up into my ureter until he got to the tumor. He then took an instrument called a “pirhana” and took pieces of the tumor out. The samples were sent to a pathologist who diagnosed my cancer. My first urologist gave me 2 options…Try Jelmyto or take out my kidney. I wanted to try the Jelmyto and I was referred to another urologist to discuss the JELMYTO treatment. THIS urologist suggested we try lasering the tumor out and I’m going to try that first. If I were you, I’d make an appointment with a NEW urologist and take a list of questions to your first appointment, which would include asking how your former urologist came to the cancer diagnosis without a biopsy, and what tests the NEW urologist is going to perform to get a definitive diagnosis. (Be sure to call your old urologist and have them send your records to the new urologist). ALWAYS get another opinion if you are uncomfortable with what you are being told. It’s your health, and your kidney you want to protect. I hope this helped.