← Return to CRPS/pain syndrome. is it time for a mobility device. Embarrassed.

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@rwinney

Okayyy, I see you, Be! 🤩💪Congratulations on taking the first big step. I was fearful too, right up to the day I was actually going. As you say, "mostly hopeful" . That is what will keep you focused on the prize. I think you know that you're worth it.

Do you have a good PCP who has your medical records history all together and will gather it to submit by fax to Mayo? Self referring is a good start to begin the process. Sometimes it's best to have your doctor refer you as well. Will you keep me posted after you hear from Mayo PRC and they advise you on the next steps?

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Replies to "Okayyy, I see you, Be! 🤩💪Congratulations on taking the first big step. I was fearful too,..."

PCP is working ASAP to get records faxed. For sleep reservations at air BnB, I need to schedule very soon and I need to go before the prices go up for the winter. So, I'm hoping its a soon acceptance or it's possible I would have to wait till April/May and that is not a good idea for me to be 6 more months in bed. I don't know that by then, my "sleep" money won't be spent on a wheelchair or my hope will have waned. So, it's out of my hands except to keep on my doctor's staff to "ASAP" and understand why. In face, I have another doctor who could send records as well, they would be duplicates, contain no additional knowledge and I know she would take at least a month or more and would most likely want to see me first and she is booking many weeks out. So I'm not even asking her. If I thought it was important documentation, it would be different.

That's the poop. It's already being hard to find an affordable place to stay for a month so just waiting. What will be, will be. Out of my hands. Staying hopeful but can't stress about it. Thanks. Be.