active surveillance no longer recommended?

Posted by kssteve @kssteve, Oct 5, 2022

I"m not a Mayo patient. I'm 62 and was just diagnosed with prostate cancer, PSA 4.7, Gleason 3+3. I have no symptoms and am otherwise in reasonably good health. My local oncologist (assigned to me at random by the medical group) urged me to consider an immediate radical prostatectomy over active surveillance. He said that the old studies saying you could wait and watch with a low Gleason score have been discredited.

Has active survelliance been discredited? Is this just his bias?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@kssteve, to my knowledge active surveillance is still a valid option for men with low-grade, slow-growing tumors confined to the prostate gland.

Here's some information from Mayo Clinic
- Active surveillance for prostate cancer https://www.mayoclinic.org/tests-procedures/active-surveillance-for-prostate-cancer/about/pac-20384946
– Q & A: Active surveillance reasonable approach for low-risk prostate cancer https://newsnetwork.mayoclinic.org/discussion/tuesday-q-a-active-surveillance-a-reasonable-approach-for-men-with-low-risk-prostate-cancer/

@sanway shared this article in another discussion:
- Monitoring Proves Better Than Active Treatment For Low-Risk Prostate Cancer https://scienceblog.com/523988/monitoring-proves-better-than-active-treatment-for-low-risk-prostate-cancer/

@carlsonte @proftom2 @peekaafighter might be able to share their knowledge or experience on active surveillance with you.

Have you considered a second opinion?

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Yes, a second opinion seems like the next step.

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@kssteve

Yes, a second opinion seems like the next step.

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Should Mayo Clinic be an option for you, there are many members who can tell you more. Here's information both about submitting a self-referral request or a physician referral. http://mayocl.in/1mtmR63

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My PSA was 10.5 when diagnosed. Gleason 6, clean MRI. Was told by multiple MDs that making a quick decision is not necessary unless you see quick rises in PSA. This gives you plenty of time to get other opinions and to calm down from the initial shock of hearing you have cancer. Read "Living with Prostate Cancer" to get more information. Another good read is, "Invasion of the Prostate Gland Snatchers". Take your time.

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Waited till PSA4 at time of Radical Prostatectomy PSA5.3 GLEASON 9
POST PSA 0.331 onto LUPRON and 40 radiation tx

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Always - no matter what get a second opinion. I didn't do that with lung cancer and had a lobectomy which has ruined my life. The surgeon was horrible and left me with chronic pain and a forever broken rib which causes my problems all the time. I saw a Mayo surgeon about fixing my chest, he said no one will ever want to help you. So please make sure all of you get as much medical advice as you can before doing anything. I have prostrate cancer now, was diagnosed last year as Gleason 7 my most current PSA is 8.5, due to my spouse having a rare cancer last year and having treatment done this last winter I was forced into active surveillance. Now with the wife on the mend I'm pretty much done waiting, and trying to decide where to have my radiation done and what type, photon or proton. I guess the type will determine the where,

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@colleenyoung

@kssteve, to my knowledge active surveillance is still a valid option for men with low-grade, slow-growing tumors confined to the prostate gland.

Here's some information from Mayo Clinic
- Active surveillance for prostate cancer https://www.mayoclinic.org/tests-procedures/active-surveillance-for-prostate-cancer/about/pac-20384946
– Q & A: Active surveillance reasonable approach for low-risk prostate cancer https://newsnetwork.mayoclinic.org/discussion/tuesday-q-a-active-surveillance-a-reasonable-approach-for-men-with-low-risk-prostate-cancer/

@sanway shared this article in another discussion:
- Monitoring Proves Better Than Active Treatment For Low-Risk Prostate Cancer https://scienceblog.com/523988/monitoring-proves-better-than-active-treatment-for-low-risk-prostate-cancer/

@carlsonte @proftom2 @peekaafighter might be able to share their knowledge or experience on active surveillance with you.

Have you considered a second opinion?

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Run, don't walk, to a new Dr.

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@dougs411

Always - no matter what get a second opinion. I didn't do that with lung cancer and had a lobectomy which has ruined my life. The surgeon was horrible and left me with chronic pain and a forever broken rib which causes my problems all the time. I saw a Mayo surgeon about fixing my chest, he said no one will ever want to help you. So please make sure all of you get as much medical advice as you can before doing anything. I have prostrate cancer now, was diagnosed last year as Gleason 7 my most current PSA is 8.5, due to my spouse having a rare cancer last year and having treatment done this last winter I was forced into active surveillance. Now with the wife on the mend I'm pretty much done waiting, and trying to decide where to have my radiation done and what type, photon or proton. I guess the type will determine the where,

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@dougs411 If going the radiation route like I did I would advise SBRT Proton treatment. I was a Gleason 4+3 with a PSA of 13+. Couldn't be easier, I had 5 treatments over 10 days at Mayo Rochester. Still <0.1 PSA after 2 years and 2 months. No sex drive and shrinking penis; but I'm 74 so I'm ok with it.

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Thanks for the feedback. Made the decision. I'll be heading to Rochester for the same treatment. Being 60 the lack of a functional penis does concern me, but better to be alive then losing some features.

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@colleenyoung

@kssteve, to my knowledge active surveillance is still a valid option for men with low-grade, slow-growing tumors confined to the prostate gland.

Here's some information from Mayo Clinic
- Active surveillance for prostate cancer https://www.mayoclinic.org/tests-procedures/active-surveillance-for-prostate-cancer/about/pac-20384946
– Q & A: Active surveillance reasonable approach for low-risk prostate cancer https://newsnetwork.mayoclinic.org/discussion/tuesday-q-a-active-surveillance-a-reasonable-approach-for-men-with-low-risk-prostate-cancer/

@sanway shared this article in another discussion:
- Monitoring Proves Better Than Active Treatment For Low-Risk Prostate Cancer https://scienceblog.com/523988/monitoring-proves-better-than-active-treatment-for-low-risk-prostate-cancer/

@carlsonte @proftom2 @peekaafighter might be able to share their knowledge or experience on active surveillance with you.

Have you considered a second opinion?

Jump to this post

I notice that the first article you reference speaks about AS with low-grade G6 and below. But Mayo should be following the NCCN guidelines for prostate cancer, in which G7 favorable is also a consideration for AS. I think possibly they are, as I'm on AS. But the context of this messaging should be changed to reflect the current educational PC knowledge and the changing ideology of PC treatment and non-treatment.

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