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Paraganglioma / Carotid Body Tumor Question

Neuroendocrine Tumors (NETs) | Last Active: Jun 30 7:27am | Replies (115)
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@hopeful33250

Hello @northwoodsbarb

I noticed that it has been several months since you last posted. How are you doing? Have you had any treatments that you would like to discuss, or any questions?

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Replies to "Hello @northwoodsbarb I noticed that it has been several months since you last posted. How are..."
northwoodsbarb | @northwoodsbarb | Oct 15, 2022

Hi,

Sorry about having been remiss about writing here. I just started back working at pk-8 school a couple of weeks after my surgery and it’s busy!

As I referenced, I did have the surgery at Mayo to remove the paraganglioma from my neck. This was mid-August. I went into surgery thinking that I would have to have my vagus nerve severed, and I would have to learn to talk and swallow. In the recovery room, I asked for ice and then said, “I can talk!” I chewed the ice and said, “ and I can swallow!” I haven’t stopped talking since.

The tumor was not on the vagus nerve, but near it. I have some nerve issues (look up Horner syndrome), but it seems like no one notices.

Thank you for asking. Mayo is the best.

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