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Paraganglioma / Carotid Body Tumor Question

Neuroendocrine Tumors (NETs) | Last Active: Jun 30 7:27am | Replies (115)
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@tenclawz

I had a needle biopsy through the back, AND, it was done locally. Biopsy was sent to a lab in Texas to learn
what it was. My doctor had never heard of it before.
I would like to hear more about your symptoms if
you would , please.

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Replies to "I had a needle biopsy through the back, AND, it was done locally. Biopsy was sent..."
Colleen Young, Connect Director | @colleenyoung | Oct 5, 2022

@tenclawz thanks for the additional information about your diagnostic process and the it was confirmed to be a paraganglioma tumor. I'm tagging a few other members who can share their symptoms and treatment experiences like @sharik @cootiesgirl1 @ristene @patriciagsr @mrruttinger1 @katherinepearl350 @northwoodsbarb.

Tenclawz, where is your tumor located? Did your doctor refer you to a cancer center or a physician specializing in paragangliomas?

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