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When have I seen enough doctors for symptoms

Just Want to Talk | Last Active: May 21, 2023 | Replies (11)

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@dgarris3

I'm attending in Jan 2023. In the interim, I'm meeting weekly with a counselor who specializes in FND, and I'm going to water aerobics 4 times a week. I've exhausted all of my PT through insurance, so going about this the most affordable way I can. I just keep getting this doubt that maybe it's something else. Unfortunately with all the testing I've had done I don't know if there's anything left to look for. It scares me that maybe the covid vaccine triggered this since my symptoms started 3 days after the 1st shot and then progressed into an unimaginable course of severe muscle movement, spasms, twitching and burning. It's been a very hard road. I'm trying to stay positive!

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Replies to "I'm attending in Jan 2023. In the interim, I'm meeting weekly with a counselor who specializes..."

@dgarris3 Good morning. I think sticking your current plan of meeting with the FND counselor and going through the approaches they recommend for management is a solid place to be for now. It does not seem wasteful of your energy and may give you a helpful perspective. Maybe taking a breath and simmering in this moment will be helpful. You mention the money you've spent and the places you've gone, doctor hopping and searching for answers. That is down right exhausting. I recall those days and I'm very glad they're behind me.

After you work through the FND plan and clinic in January, maybe you'll have a better handle on your concerning gut feeling. If it's still there, perhaps you will find a new way to to address or follow it then,

Do you have supportive family or friends? What do they think about your doubt? I count on my husband to help me weigh thoughts and doubts. Who can help you?

Hello!
Can you update us on the FMD clinic? I will be going to Cleveland clinic in a few weeks. I was diagnosed with FMD in addition to a few other things recently. I’m hoping for a good treatment plan. I will look into the clinic you mentioned as well.
Best of luck,
Kat