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@gastrogirl

I started out with getting an endoscopy and them telling me I have Autoimmune Metaplastic Atropic Gastritis. They biopsied many areas for NETS. They saw they were precancerous and now I get this done at least once a year watching carefully. Does anyone else with NETS have AMAG as well?
Any doctor or anyone I see has never heard of it nor do they know how to treat it. I even been told it does not exist yet Mayo has many patients with it. Thanks everyone

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Replies to "I started out with getting an endoscopy and them telling me I have Autoimmune Metaplastic Atropic..."

Hello @gastrogirl

What an interesting question. I am not personally familiar with this disorder, however, I did some research and found information on the MSD Manual website. Here is the link,
--Autoimmune Metaplastic Atrophic Gastritis: Recognizing Precursor
Lesions for Appropriate Patient Evaluation
https://www.msdmanuals.com/professional/gastrointestinal-disorders/gastritis-and-peptic-ulcer-disease/autoimmune-metaplastic-atrophic-gastritis
What type of treatment are you having for this rare disorder? Are you receiving B12?