How did the neuropsych evaluation go? Help any? I know you said only 2 years + Covid patients reply but I'm into month 7 and am 74 years old and might not be around for two more years if someone doesn't start treating the ailment. No not treating it but at least start documenting and identifying the ongoing damage. I continually tell my family doctor that I have all the normal symptoms and a few rare like covid tongue and intense pain in my replaced hip. So he finally gave me a referral for an x-ray to my hip, a PT referral and a referral to a neuronal psych. Of course the X-Ray won't show infections (Need MRI) but it did pick up bone deuteriation, so he did a scan for autopoiesis which came back negative - So one would think the next step is an orthopedist and a MRI but not so. I still have my PT referral but with the excruciating pain in my hip, I think I'll wait until the psych cures me.
I do have neurological symptoms like migraines, radiating nerve pains, spinal deuteriation, brain fog and double vision as I assume you do too - I just don't see how a psych can talk me out of them. However, since it took 3 months to get the appointment - I'll try anything. I would have hoped for a real neurologist though.
I just don't understand the run around we are getting. You can't get diagnostic test, most covid treaters won't take walk-ins without a referral and appointments are months out, and family doctors refuse to even supply placebos.
I know there are some promising probiotic studies out there - why not flush the gut since it's been accepted that he covid virus loves that host community and reintroduce new bacteria with new probiotics? We should have data on our past colonoscopies' (They are filmed) why not run another for long covid to see and compare what damage Covid may or may not have done to the intestines?
My concern is the insurance industry (with government help) is prohibiting care due to the volume of patients that have long covid. If they treated it as an illness - the massive volume of care - claims would overwhelm the industry. If this is true, they are trading months - years of my life for a few dollars savings for the insurance industry.
Get yourself in a long Covid treatment center or university program. Once they clearly diagnosed me with Covid and established me in their long Covid programs, insurance covered me seeing the best neurologists in Chicago, some of the best long Covid experts in the country.