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Tarlov cyst: What is better to relieve pain ice or heat?

Spine Health | Last Active: Aug 20 2:13pm | Replies (22)

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@bustrbrwn22

@frances007. Can you share more about your Tarlov cyst journey? I have had terrible sciatica and interstitial cystitis since 2014 and just found out I had Tarlov cyst by a serendipitous set of circumstances. I am scared since just this year my toes and feet have started to sporadically go numb and be unable to sense the difference between hot and cold water.

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Replies to "@frances007. Can you share more about your Tarlov cyst journey? I have had terrible sciatica and..."

I had surgery in 2018 to remove the Tarlov cyst and the surgery was a complete success. I had similar symptoms which you have described. My surgeon advised that it was best to remove the cyst because leaving it in place would lead to more problems in future. I was hospitalized for about 3 days and the surgery was a complete success. I would encourage you to find a good back surgeon who is familiar with these cysts and the removal of the same. I hope my experience will be as good as mine if you go ahead and have the cyst removed.

in reply to @bustrbrwn22 I would suggest that you go online and look up: Rudolph Schrot MD, as he is one of the few great surgeons whose specialty is Tarlov Cysts. You may be able to watch one of his recent webinars on YouTube, but I am not sure. There are very few doctors who specialize in the removal of these cysts, making it more important that you see just the right doctor. I do not know if his recent webinar is on YouTube, but it might be worth checking out. As I mentioned, my surgery was a total success.
Now the interstitial cystitis is something I really need some help with, as I presently have my 10th UTI of the year. I found a really great website, UTI Free, that has some very good information that I plan to take with me the next time I see my urologist. You might want to check it out, as it explains why we get recent UTI"s, the nature of the beast and things of that nature. It was started by a woman who had multiple UTI's and wanted to help others like us. There is also a patient handout one can take to the doctor that has specific questions that can be asked about bladder issues. I have just sent a note to my urologist asking her to perform that procedure where she can look inside my bladder to check for certain abnormalities. I had no idea that oftentimes UTI's are not completely resolved via antibiotics, thus the recurrence. Here is the link: https://liveutifree.com. Best of luck. Go figure that I walked to the pharmacy a few minutes ago to get my antibiotic and they were closed for lunch. LOL