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CRPS - anyone suffering with complex regional pain syndrome
Chronic Pain | Last Active: Oct 25 3:58am | Replies (366)Comment receiving replies
Good question. I had something that they called metataralsia. At least that's what doctors thought it was. I saw three different podiatrists. The first two just took x-rays and told me to take Ibuprofen. The third one took me a bit more seriously and did an MRI to rule out a planter plate tear. The MRI showed some muscle atrophy in the small muscles between my toes. But there was no other evidence of a planter plate tear. I have very high arches so, apparently, I have had minor injuries in my feet off and on for my entire life. Eventually, this doctor got me to Mayo clinic where I got tested and was diagnosed with some small and large fiber neuropathy. However, the neuropathy was not in line with the symptoms in that left ankle. I always have the neuropathy symptoms but the other types of odd swelling come and go. The temperature change is pretty much always there. The bottom part of my leg and ankle and foot are always colder on the left side than the right. This last flare at I am pretty sure was caused by my physical therapy evaluation. It started when I stood on my left foot for the balance test. Stupid balance test. 🙂
Replies to "Good question. I had something that they called metataralsia. At least that's what doctors thought it..."
I have high arches too. Even needed girl shoes as a toddler in the 1980's to get enough support lol. Too young to remember so it's okay.
If you're able to pinpoint the discomforts and historical perspective I'd imagine a physician could as well. Have you had ultrasound?
Today, I'm going to see an ultrasound / PRP injection doctor (plasma-rich platelet). Saw my pain specialist yesterday who put me on Buprenorphine from extremely low-dosing of Tylenol 3. They gave me stomach aches and I stopped taking them knowing pain would get worse, and did. See how that goes. Had high hopes until he said PRP doesn't work for nerve damage, only cartilage. Still going to go talk though. If anything, I want my nerves mapped to figure out where the nerve damage is if only for peace of mind and to have a better understanding of my body.
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“Stupid balance test”. Yep. We know our bodies. I had a new PTA do a series of exercises and stretches on one side of my body, then at the end he said “okay, we’re going to just do one side today, as a control, to see how your body reacts”. Hm, I don’t think so. I explained to the PT that the thought of one side of my body being deliberately irritated more than the other made me very uneasy.
By the way, I have SFN, not CRPS - just reading along today.