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CRPS - anyone suffering with complex regional pain syndrome
Chronic Pain | Last Active: 6 days ago | Replies (362)Comment receiving replies
Thank you for your response. I'm not sure how long in a cute face would last or if it can happen chronically. Things first begin for me about 4 years ago. There has been a study progression of symptoms worsening but it is more like a cycle. I kind of think of it as having flare-ups. It was my physical therapist your first mentioned CRPS a few years ago. Then, about a year and a half ago, a podiatrist mentioned that he was afraid that was what was happening. Most recently, it has been my neurologist who has mentioned princess diagnosis. She seems quite familiar with the disorder. We know that there is some systemic mystery going on. But this left ankle needs to be following a different pattern than the rest of my body.
Replies to "Thank you for your response. I'm not sure how long in a cute face would last..."
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You're welcome. I wish I had better suggestions on what to try next, but don't. It seems you have it squared away with the length of time for each doctor.
My flare-ups are what you describe, cyclical to some degrees with obvious triggers such as weather and activity. Weather fades, temperatures stabilize and things reset to the new normal but always revert back to that cycle. I think of it as an over timer that dings then resets until next time.
CRPS type 1 is where they have not found a distinct nerve injury, whereas Type 2 there is known damage. My question is around the time four years ago was this phantom pain or was there an event that could have caused this?
My understanding is even needle pricks can cause CRPS in extremely rare cases.
Stages of CRPS:
https://med.stanford.edu/pain/about/chronic-pain/crps.html