Connect
← Return to Anyone have Primary Aldosteronism (Conn syndrome)?
Discussion
Anyone have Primary Aldosteronism (Conn syndrome)?
Diabetes & Endocrine System | Last Active: Nov 29, 2023 | Replies (20)Comment receiving replies
Hi Martin,
I was just diagnosed with hyperaldosteronism. I am 58 y.o. and my doctors have been suspecting that this might be the cause of my very high blood pressure which came out of the blue at age 45 (13 years ago) The big hint was that my K+ levels were also low and I struggle to maintain them even on 40 mEq/day. My aldosterone levels had been okay until about 3 weeks ago, when they went from 10ng/dL (Jan 22) to 19 ng/dL (Sept 22) and my ALDO/PRA ratio went up from 37 to 126.7. To rule out an adrenal tumor, my nephrologist ordered an MRI of my abdomen and the results were normal. So, if you know what else could be causing my hyperaldosteronism I would love to hear your thoughts. Thank you. Sue
Replies to "Hi Martin, I was just diagnosed with hyperaldosteronism. I am 58 y.o. and my doctors have..."
Hi @csage1010. Sorry I'm late checking back with you. My computer went on the fritz last night, and it took me most of the day to restore it to working order. I was thinking about you though, and I knew about a good source of medical information about hyperaldosteronism. It can give you a full dose of basic information about the disease, based on this key quote: "The most common symptom of hyperaldosteronism is high blood pressure (hypertension), especially medication-resistant hypertension." Starting there, the article reaches out into a wide range of information on the disease, with at least some insights on where it comes from. Check out the posting you get with the link below, then get back to me with residual questions that I can help you home in on. Some causes of the disease are vital to know about.
https://my.clevelandclinic.org/health/diseases/16448-hyperaldosteronism
Martin
Hi Sue, I am 65 years old and 2 years ago I was diagnosed with hyperaldosteronism had all of the classic symptoms of the disease.
Strongly enough my ct scan of my adrenals was normal but a very high ARR blood test convinced my endo I was hyperplasia.
I am based in the UK..
Very few Drs here know how to treat and manage complications from hyperaldosteronism.
Connect
Hi @csage1010. I have to run off right now but will dig into hyperaldosteronism in the morning and get back to you. Overnight, please think about getting examinations by a nephrologist and an endocrinologist. Both were pivotal in my diagnosis, treatment plan, and outlook for managing my hypertension. The diagnosis hinged on examination of a growth on one of my adrenal glands -- noncancerous AND (it turns out) not contributing to my hyperaldosteronism. After several years of fooling around with my BP problem, we launched our new treatment last month. Potassium has been in short supply in my system, but we think it was run off by BP medications -- which now number 5, but different ones with unique dosages derived by my endocrinologist from special examination procedures. More tomorrow after I have a chance to dig a little further into the literature. Martin