← Return to CRPS - anyone suffering with complex regional pain syndrome

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@chuck406

From my perspective this doesn't sound like CRPS but remember there are three stages to it: acute, sub-acute, and chronic. Early on they thought I was full of ya know, and they were convinced I was a drug seeker. Some symptoms during acute for me were inflammation, uncontrollable pain, and this leads to your body countering physiologically naturally by trying to attack the problem through swelling, the nerve signals in the body, to the brain ,etc. Your description seems accurate of the way I remember the acute to sub-acute stage. Chronic is a whole other nightmare.

Anyways, it wasn't until I switched to Jackson Hole, WY that it was taken seriously. The MRI and X-rays didn't show much other than the initial injury, but when I was describing what was happening within my own body he didn't have a CRPS answer. It's when I went to The New York Hospital for Special Surgery that they called it almost immediately; classic symptoms and more tests were done. Mayo Clinic and Scripps Clinic confirmed with at least half a dozen other pain specialists, neurologists, surgeons, etc.

Have you sought a second opinion, and do you have access to doctors in your area that understand CRPS?

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Replies to "From my perspective this doesn't sound like CRPS but remember there are three stages to it:..."

Thank you for your response. I'm not sure how long in a cute face would last or if it can happen chronically. Things first begin for me about 4 years ago. There has been a study progression of symptoms worsening but it is more like a cycle. I kind of think of it as having flare-ups. It was my physical therapist your first mentioned CRPS a few years ago. Then, about a year and a half ago, a podiatrist mentioned that he was afraid that was what was happening. Most recently, it has been my neurologist who has mentioned princess diagnosis. She seems quite familiar with the disorder. We know that there is some systemic mystery going on. But this left ankle needs to be following a different pattern than the rest of my body.