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When have I seen enough doctors for symptoms
Just Want to Talk | Last Active: May 21, 2023 | Replies (11)Comment receiving replies
@dgarris3 You're welcome! Thank you for sharing information on the Functional Nerve Disorder clinic you're going to. It sounds promising.
You asked, "when can I feel comfortable that I've done enough testing?". It's very difficult, especially if the diagnosis isn't one you want to accept, or feel makes sense.
You certainly sound as though you've exhausted many options by going to specialists of major teaching hospitals and having a plethora of testing. I was denied being seen at Mayo, too. I understand how you feel.
Perhaps going to the Recovery Project FND program will bring you some clarity. When will you be attending the clinic?
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I'm attending in Jan 2023. In the interim, I'm meeting weekly with a counselor who specializes in FND, and I'm going to water aerobics 4 times a week. I've exhausted all of my PT through insurance, so going about this the most affordable way I can. I just keep getting this doubt that maybe it's something else. Unfortunately with all the testing I've had done I don't know if there's anything left to look for. It scares me that maybe the covid vaccine triggered this since my symptoms started 3 days after the 1st shot and then progressed into an unimaginable course of severe muscle movement, spasms, twitching and burning. It's been a very hard road. I'm trying to stay positive!