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Radiation and Invasive Lobular Cancer

Breast Cancer | Last Active: Mar 10 6:55pm | Replies (34)

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@joanly

I have been diagnosed with invasive lobular carcinoma, surgery this Thursday with recommendations for hormone therapy and radiation. My tumor is grade 1A so radiation oncologist said it depends on pathology but based on pre-op biopsy and genetics he will “most likely “ recommend 3-5 days in the same week, of radiation. But he cautioned that after pathology it could change. He also said that he is sure that if I need more it won’t be much more. He also said that because it will be short term, the side effects will be minimal! We’ll see😊. I told him whatever it takes to kill the cancer, I’m on board!

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Replies to "I have been diagnosed with invasive lobular carcinoma, surgery this Thursday with recommendations for hormone therapy..."

Thinking of you @joanly as you recover from surgery.

Checking in and hoping no surprises with your surgery! I'm in a similar boat - lumpectomy is scheduled for this Wednesday- lobular - 1.6cm - grade 2, ER+, Her2- The oncologist I met with said most likely radiation followed by 5 years of anti hormone (I'm 57 yrs old) pills. I'm wondering what type of radiation your oncologist recommended for lobular. I wanted to throw out the topic of "proton beam" radiation and if anyone has had it for lobular. I'm in Boston and the only machine is at MGH and it sounds like it is not routinely used for breast cancer. I'm very anxious about radiation but like you said whatever it takes to kill the cancer -

Hi Joanly! Your situation is almost identical to mine (to start with): invasive lobular carcinoma (Dec. 2023), removed by lumpectomy (Feb. 2024), with radiation and hormone therapy to follow. However, pleomorphic LCIS was also present, and the margins were not clear, so I need either another lumpectomy or go straight to a mastectomy (but then no radiation therapy, just hormone therapy.) How did the radiation therapy go? How is hormone therapy going? Thanks for any info you can provide.