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Low grade ureter and renal pelvis kidney cancer diagnosis.
Kidney Cancer | Last Active: Mar 9, 2023 | Replies (37)Comment receiving replies
I had the appointment with the doctor to discuss the Jelmyto treatment today. He has treated one patient with it, but unfortunately the patient passed away from another ailment before they could finish the Jelmyto series. When I told him another Urologist told me my options were 1) Jelmyto or 2) radical nephrectomy, I could see the expression on his face even BEHIND the mask. He completely disagrees about the nephrectomy and suggested we try lasering the tumor, even though it’s in a tricky area. He stated that I have very low grade, non invasive urothelial carcinoma and everything should be done to save my kidney. He said he would do his best to get all the tumor, but if it did return, we would do the Jelmyto treatment through a nephrostomy tube, which he would insert surgically and would stay in place for the 6 treatments. He is against inserting instrumentation through the bladder every week for 6 weeks and thinks it causes unnecessary trauma to the ureter AND the patient. So, I am waiting for a call from the surgical coordinator as I have decided to try the laser procedure. I was quite relieved when the dr offered this option, and I feel it’s worth a try. Feel free to reply with any questions you might have.
Replies to "I had the appointment with the doctor to discuss the Jelmyto treatment today. He has treated..."
I was diagnosed with ureter cancer in July. The hospital said they think I have cancer. I went to a urologist in NJ. He did a cystocopy which was normal I had a positive urine test for cancer and they saw what they believed to be cancer cells in my ureter so he said it was cancer and he needed to remove my kidney, ureter, and bladder. I wasn't given any other options and no other tests where taken. So I then went to a urologist at cooper hospital in NJ, he never examined me and also didn't do any further tests. He too said when there is cancer in the ureter the only option is to remove everything and again wasn't told about any other options. He too said he THINKS its cancer. If all these doctors are saying they THINK, shouldn't they have done frther testing to make sure it is cancer. Hope you can help. Thank you
Sally, have you had your laser surgery yet on your UTUC kidney cancer? I am on round 3 of Jelmyto treatments. I did the laser proceedure about two years ago. HOW ARE YOU?
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Hello @sally0526 and welcome to Connect. I see that you have already met @pcondon and you have both been sharing information.
It sounds as if the doctor that you saw today provided you with some positive feedback regarding treatment. Your actions show the importance of getting more than one opinion when you are dealing with the possibility of surgery.
How are you feeling now?