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Letrozole and checking estrogen levels

Breast Cancer | Last Active: Feb 10 11:03am | Replies (70)

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@ssalget

Thank you for this post. This is almost exactly my story. I had a double mastectomy, with clean margins and clear lymph nodes in October 2021, and a low OncoDX score of 11. I will be 70 in December. You put it very well. "Instead of celebrating being cancer free, I feel like I'm living with a cancer that hasn't been cured." I had very severe side effects on Letrozole. That prompted me to do more research. I have some heart issues and my bone scan revealed osteopenia. I have pretty much decided to work on building up my immune system through diet and supplements, exercising more, controling my weight and using techniques to lessen stress. I am waiting for an appointment with a integrative oncologist. My medical oncologist is not happy with my decision and doesn't have any other support to offer, except yearly palpation of the mastectomy scar. I feel pretty much on my own to find support, but I'm working on changing my mindset to celebrating a win over cancer and feeling grateful for everyday and the love and support of my family and friends. It is indeed a life changing experience and a very personal one. I too, send my best to all on this journey.

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Replies to "Thank you for this post. This is almost exactly my story. I had a double mastectomy,..."

Try reading Radical Remission and Radical Hope both by Kelly Turner..
10/3-7. Dr Turner is presenting a free on line docuseries on Radical remissions. YouTube is also carrying it on HayHouse channel.

Just curious, if you stayed on the meds what would your oncology appointments look like? IMO nothing should change if they are not actively measuring estradiol levels anyway! And the oncologist might suggest seeing you MORE frequently if not on the med IMO. Some of these doc decisions just don’t make sense.

I’m definitely looking for an integrative oncologist myself as I want to support my immune system and my bone mineral density going forward. I’m not having any obvious ( for now) side effects from Anastrozole and in month six. I’m grateful for that. But I worry about cholesterol and osteo issues.

Hoping for the best for you on your journey. 🌸