Replies to SusanEllen – So you'd prefer the doctors just be guessing? So many illnesses have similar symptoms….

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Polymyalgia Rheumatica (PMR) | Last Active: Jan 21, 2023 | Replies (106)

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SusanEllen - So you'd prefer the doctors just be guessing? So many illnesses have similar symptoms. The disease you've been dealt, unfortunately can be very difficult to diagnose. For some people it has taken years of pain before they finally get a diagnosis. At least you know you're probably on the right track. Just take it one day at a time. We're all walking beside you! 8>)

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Replies to "SusanEllen - So you'd prefer the doctors just be guessing? So many illnesses have similar symptoms...."

SusanEllen66 | @SusanEllen66 | Oct 3, 2022

Ah, guess work is still a part of everything. I understand what you are saying.
I know my body very well and I can tell you that I have never had all of these strange unilateral goings on before. It’s textbook…
So, when it walks like a duck, looks like a duck, sounds like a duck, and smells like a duck you can bet it’s a duck.

GCA is basically treated with one drug at the present time. There is no cure, and there is a high probability of relapse. The biggest concern is permanent vision loss. I’ve already had intermittent vision loss. GCA is not potentially fatal like the other form of Vasculitis I have (PAN).
So, why do I need a formal diagnosis? I guess I really don’t 🤷🏻‍♀️not for me anyway. My doctors and the insurance company are going to want something to pin on me. ☣️

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