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Atypical lobular hyperplasia: Did you have surgery?
Breast Cancer | Last Active: May 14 6:45pm | Replies (89)Comment receiving replies
Hi, I was diagnosed with DCIS in my left breast with focal microinvasion. Then was sent back for a second biopsy, also the left breast, for a nearby small area that was then diagnosed as ALH. The surgeon has informed me that any lumpectomy would include removal of the DCIS and the area of ALH. Because I have small breasts (small A cup), the surgeon is actually recommending a Mastectomy vs. lumpectomy. Since I have Stage 0 and an area of pre-possible cancer this is very hard to accept and understand.
Has anyone been in this situation? Does this make sense.
My surgeon is from a well-known and respected hospital. I do trust the surgeon but it is difficult because I don't even know what questions to ask.
I also wonder that I have not been referred to an oncologist - does that make sense as well? Perhaps since I don't actually have a malignancy there is no reason for an oncologist?
Thank you
Replies to "Hi, I was diagnosed with DCIS in my left breast with focal microinvasion. Then was sent..."
Hi,
Finally, did you do a mastectomy or lumptectomy?
My condition is similar to yours...
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Hi @dmart37 I have not been in this situation exactly, but what your dr is saying does make sense. I had invasive DCIS which bumped up my stage to stage 1, which required an oncologist to become involved. That was a year ago and now I have been diagnosed with ALH in my right breast and I want it removed. I totally understand your confusion around your diagnosis and not knowing which questions to ask. I would ask if an oncologist is warranted, what are my treatment options, how much of the breast is involved, is a mastectomy my ONLY option, is reconstruction after a mastectomy an option….? I hope this helps and I wish you well! 💗