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Tymlos side effects I've encountered

Osteoporosis & Bone Health | Last Active: Dec 3 9:58am | Replies (289)

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@windyshores

Did you take a full dose?

I started Tymlos at half and then full dose and ended up in the ER. Had afib, but also was dizzy, headachy, pain all over, nausea- lots of side effects.

I stopped, then met with docs, then restarted at two clicks out of 8 (my idea). I slowly went up over two months, to 7 clicks, where I have stayed for a year. This really minimized side effects. Many days I have none at all.

I have found that hormonal drugs like this (and my cancer med too) have more side effects at first and they change and even lessen. But my full dose attempt created a cardiac side effect that was serious.

With fractures and a committed desire to avoid further pain and disability, I was determined to get back on and have not suffered any significant side effects with this ramp up plan.

That said, Forteo was intolerable for me and does not have an adjustable dose. I have not tried Evenity but that might be an option for you.

Or....you could try two clicks of Tymlos and see what happens, then go to 3, then 4.....and so on!

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Replies to "Did you take a full dose? I started Tymlos at half and then full dose and..."

I'm so glad that you were eventually able to tolerate the Tymlos! I think I will start it again at 2 clicks and go up slowly to see how many clicks I can tolerate before getting any side effects from it. Thank you for replying...I feel encouraged to give it one more try.