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Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: Nov 5 10:09pm | Replies (1348)Comment receiving replies
Can you have a DEXA and determine whether it might be better to save a whole year of Evenity for later? Have you ever done Tymlos or Forteo in the past? (I have read that you can do Evenity after those but not the other way around.)
My endo doc doesn't do the CTX and P1NP blood tests. I did ask my PCP for baseline tests before doing Tymlos. Interesting that your doc does blood tests.
I am doing Tymlos for 18 months. I am going to ask about getting a DEXA after one year (this month) in case I should save the second year for later. The plan was to do DEXA after 18 months, then do a partial dose (1/4) of Reclast to see if I tolerate it (with hydration, premeds, and slow infusion). After one or two infusions I could then take a break and be monitored.
I like your idea of short acting alendronate! Hope you are feeling safer! I know I am....Evenity turbocharges!
Replies to "Can you have a DEXA and determine whether it might be better to save a whole..."
Hello Windyshores
I did not see this post, so pardon late response.
As noted above my plan is to do several rounds of Evenity, so not sure what your question means about saving a whole year of Evenity for later.
I have not done Tymlos or Forteo.
The CTX P1NP tests are not covered by insurance, but they can be done upon recommendation by doctor and payment by me.
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Hello Windyshores
The information I have from my doctor is that I can do Evenity for two years, then switch to biphosphonate, then back to Evenity... but this is his thinking based on his knowledge of Evenity works with the bone chemistry. It is not backed up by any research studies. We discussed the option of switching to Forteo, but the doc felt that since I have had good results from Evenity with minimal side effects -- that it would be best to stick with what has worked for me rather than trying something new.
My doc does not do CTX or P1NP tests. He refers to hospital and the hospital lab does the tests.
Glad you are feeling safer! I read a study that feeling positive reduces the chances of fracture and tends to increase bone density.