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Vitamin B12 deficiency and small fiber neuropathy

Neuropathy | Last Active: Dec 1 5:24am | Replies (87)

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@ess77

Hello, @mikeg0852, @rwinney, @artscaping, @johnbishop, and all...Rachel, as always, you have great information and help for us. Chris, it's good to 'see' you again. I've missed your dear personality...Mike, I've experienced many of your issues myself. In my case, I'm now thinking it's a DNA issue for me and the inability to absorb B's by my gut, the way they get to the cells and organs and help us all over. I've had huge issues for many years that now we think go back to that one thing, lack of B absorption. Now I find I have D deficiency, B deficiency, and Ferrous deficiency in my bone marrow. Iron deficiency isn't indicated in regular blood tests, and requires a specific test for diagnosis.

I take Super B supplements, Centrum Silver for Women, D3, Zinc, VitronC (iron supplement + C required for iron absorption), magnesium, 2X monthly B shots I give myself, and several months ago had 2 ferrous infusions.
Walking into the hall for the infusions, I almost fainted and lost my balance. I use a walker most of the time and a cane at home. After the infusions, about a week+ later, I began to be a different person. In amazing ways. Energy, outlook on life, breathing was improved, walking was steadier, could get out of a chair without struggling, could turn over in bed without struggling..and such. It was absolutely a miracle!

I'm going this week for follow-up bloodwork to test all these levels and see what's happening. I may need additional infusions as time progresses, 2=3X annually. May not need them. I'm continuing to take the VitronC daily and may be absorbing it. Don't know. I am thrilled at the changes in my life.

I'm able to live a life again, almost. I can walk better and more. I just last week, for the first time in many decades, walked over 6K steps or so says my FitBit. I've also moved forward in my thinking and depression/anxiety issues. I now accept all this stuff, don't like it but accept it, and now am making the changes in my life to move forward and have good days. It's amazing the transformation.

Please, please get to a doctor who will listen and steer him to these tests to determine your levels. They hide from normal tests and influence our bodies in a multitude of ways. All of us. The feet are still numb, still hurt, and badly at times. I still have autonomic neuropathy but I'm dealing with everything so much better and improving in every way. I can't tell you how different I am. I think the new me is the real me I've met for the first time in many, many years. I like me, eh?

Thank you Connect friends, Mayo staff, and providers, and of course, God for bringing me to this place of life where I'm able to have good days, have learned how to rest, and give my body time to recharge. I'm thankful for my stubbornness and determination to find real answers. For the doctors who finally listened and had the knowledge and mental questioning to find what was underlying the symptoms.

Keep pushing to get to the bottom of your causes of symptoms.

Blessings and may you each move forward in this journey! Elizabeth

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Replies to "Hello, @mikeg0852, @rwinney, @artscaping, @johnbishop, and all...Rachel, as always, you have great information and help for..."

I'm sorry to hear that, @ess77 . However, I am thrilled to hear you are seeing progress from your ferrous injections! What type of test did you need to diagnose this? I saw you mentioned that it was not from a regular blood test. I will keep you and your recovery in my thoughts!

Hello, my friend, @ess77 -
Such wonderful news you are sharing! 🤩 I'm very happy for you.

What? 6K steps! You GO girl!!! I believe that FitBit.
All things good are wished for you. Keep on keepin' on.
You inspire!