← Return to CRPS/pain syndrome. is it time for a mobility device. Embarrassed.

Discussion
Comment receiving replies
@rwinney

@bebold Hello there. If I had a magic wand, I'd pouf you to Mayo Clinic Pain Rehabilitation Center... where some people begin in a wheelchair but leave on foot. PRC offers so much physical and behavioral therapies that would greatly benefit you based on what I've gathered from your post. Oh boy, if only it were that easy, my wand would be ready!

Thank you for sharing your struggles and inner most feelings. At the end of the day it's all about you, your needs. Noone should live rent free in your head. You are the one that matters and you gotta do what's best for you. If that means a wheelchair then so be it. Make sure you look GOOD in that wheelchair and let 'em talk. 😉

Jump to this post


Replies to "@bebold Hello there. If I had a magic wand, I'd pouf you to Mayo Clinic Pain..."

Rachel, And so poof! I was originally looking for an inpt intense program as I thought that's what I needed. Then realized you had an intensive outpt that is 5 days a week for 3 weeks. I am very fortunate to be retired and chose the more comprehensive medigap coverage so I am covered 100% by insurance. Can't afford the hotel but have found vrmo's pretty close by for as low as $900 for the entire month. Doable esp with the good fortune to
most likely have the medical paid for. And I'm close enough to drive the not even 7 hours and be there. (NC)

I'm thinking it will also help regulate my sleep and life as things in general are very out of control with sleep/wake/diet and well, laziness too. We get into bad habits and I need a real shift. To reawaken to life. Esp since I also have longhaulers for 2+ years and it's taken a huge toll on me and so many of us. A kickstart back into life is definitely in order! I need to start doing life again and your program feels like what I need. So I was going to contact someone and check out insurance and waiting list and well, maybe get out of hurricane season! Or maybe closer to holidays where I can spend a little time with family in FL after as well. When I'm good as new! A month at vrmo gives me a few days before to acclamate and a few days after to rest and visit. I'd have my car there.

So, funny you should mention it. I don't take pain meds except occasional toridol and a small amount of Ativan for sleep so I was thinking I would come off of first?

I will call next week and speak to someone about the best plan. I need something to give right now. I'm not ready to give up to a wheelchair and wonder if that's the beginning of the end for me. It's one thing to feel ashamed of my body after all these years, and my weight which plays into will they think I'm in a chair/scooter because I'm fat! I'm not ready. And I need help. Also good time to seriously get back to an Antiinflammatory diet. I know it's helped before but chocolate has helped the pandemic!

So, wave that wand. I plan to come down. I was even thinking if someone else wanted to be there but can't afford the $200+ night for a hotel, we could figure it out together. Always good to meet new friends. There are vrmo's not far from Mayo.

Keep a good thought. It's my latest plan. 💜🤞🏼🙏🏽 Jump start my life again. I've been down for too long. My psychologist specializes in autoimmune and other "chronic" conditions and knows CRPS and what I have gone thru these last two years starting with my mom dying of covid in Feb 2020 before we knew it was here. And so many other things that have taken me down the rabbit hole. She and I talked about it last week. She is all for me coming down! 100%.

Wave that wand. Keep away the hurricanes, Hope y'all made it thru better than some others...I'm on my way.

Currently I use forearm crutches when out and about, I'm unaided at home and use a stool on wheels at the sink, desk chair when I need to etc. That's why a wheelchair is huge. Feels like a slippery slope as I now also need oxygen at night from covid. Not ready to give up. There needs to be a way. I am hanging my hat on Mayo pain clinic this week.