I understand "I just don't feel like I am being heard by doctors." And I would guess that at least 80% of the people on this site have had the same feeling at one time or another.

The ER is the most frustrating place for me - but my daughter (formerly a paramedic & ER nurse) explains - "Our job is to stabilize people and move on, so rare diseases and infections are out of our realm. Most of the docs and nurses have never seen or heard of MAC, and may even try to tell people that they are on too many antibiotics." This is not an indictment of the system -simply an acknowledgement that every part of the medical "complex" has a role - theirs is to make sure we stay alive until we can see our own provider.

Perhaps you can discuss lessening the saline nebs - maybe go to 3%, or once a day? One question, since you mentioned that coughing can follow eating - have you been evaluated to see if you have GERD or a swallowing disorder?

Sue