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Do I really have PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Jan 21, 2023 | Replies (106)

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@SusanEllen66

No, I see a local Rheumatologist and she is consulting with the rheumatologist at Mayo.

As you know, GCA/PMR are forms of Vasculitis.
I also have another form of Vasculitis. My Polyarteritis Nodosa was diagnosed in 2015 via biopsy. It’s a very rare disease. So, my arteries are inflamed already. However, the GCA symptoms are very different.
I don’t know what an endocrinologist would be helpful for. This is an autoimmune disease therefore a rheumatologist is the specialist.

My Polyarteritis Nodosa is so rare I have had to teach my health care professionals about it because they have never seen it before! Now, that’s frustrating!

There is a Vasculitis Foundation you can check out for more information.

Have a great day! 🌻

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Wow, I’m going to read about this. Thank you so much. I can’t tell you how much better I feel on prednisone now. I’m perfectly fine. Slight headaches now and then, but I’m back to normal.
This site and all of you wonderful people help so much too. 🥰