← Return to Palliative Care: What is it? How do I get it?

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@alive

Thank you for sharing your experiences with palliative care! I was diagnosed with acute myeloid leukemia 6,5 years ago. I had a lot of chemo, stem cell transplant and was in and out of the hospital for a very long time. I wish I knew about palliative care at that time - I would have really benefited from it.

We had a social worker on our floor when I had my transplant, but I felt like I could have used a lot more support at that time. My hematologist oncologists were totally focusing on “fixing” me and they did. I was also focusing on surviving and beating my cancer. All other aspects of recovery were largely unaddressed. I have a strong faith in God, so prayer and meditation helped greatly. Hoping not to need it in the near future, but I am prepared to utilize it next time.

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Replies to "Thank you for sharing your experiences with palliative care! I was diagnosed with acute myeloid leukemia..."

@alive, Oh, I'm so glad that you found out about Palliative Care. You've had a pretty rough road and I love your sign-in name that celebrates it. Palliative care works very well if and when you need it, but sometimes you have to ask for it. And it also depends on the person helping you the most whether you get the support you want or need.

I think that in this day we all have to look into ourselves for most of the comfort, as you did turning to your faith. Part of the healing process has us doing this, looking to ourselves for strength that we didn't know we had.

Stay well and use your strength if you ever need it for this again! You've done so well!