Evening all,
back in the ward after a bit of a stumble with my medication. I Was diagnosed with this belter earlier June after a week in hospital getting steroids for 3 days drip and then 60mg oral a day. my symptoms have been double vision, walking and gaite bad, a horrible wet feeling on the left of my face, trouble eating or drinking and swallowing, and hiccups. I was allowed home after a week and recently have started to cut down on my preds but haven’t coped to well. Went from 60mg to 40mg with a new immune suppressant myfenax to start at 500mg. Bloods every 2 weeks and down another 10mg on the pred if all is well every 2 weeks and up on the myfenax until stable on 1000mg and 20mg pred. Got to 30mg pred and 750mg myfenex when symptoms started returning. Walking with a stick ok still, swallowing is worse and dizziness returned quite bad but not double vision. Sorry for the long story, I’ve nothing to do on the ward and I ain’t paying £10 a day for rubbish tv 😳. Question b4 I see the consultant, do you think I’ve came off the pred to quickly, seems most come off 5mg or 2.5mg at a time. 20mg in 1 leap seems abit steep. Thoughts and questions most welcome. Have a good night