Thank you for the kind words and advice. I can certainly set up a group chat or email to keep family and friends apprised of my status. Great idea! And you are right there is no rush to share my health problems with anyone.
Yes I am being cared for by a major cancer center not far from my home with a tumor board finalizing the treatment plan. That is now scheduled for 10/12/22.
After today I have a solid understanding of treatments and options once the treatment plan is communicated.
My post yesterday was somewhat bad timing as my brother’s best friend passed with lung cancer earlier in the day which prompted a call from my sister to share the news. That hit pretty hard listening to her summary of his journey.
On reflection he was not nearly as health conscious as I have been and I know everyone’s story is different. I have concluded I will be the success story in this journey. I have unfinished goals yet to accomplish. I will let that be my motivation to push through the treatments.
I know they will not be without challenges, but I think I’m in a good spot. I’ve got 1 or 2 more umbilicals to connect to that will help me on my path to the “new normal”.
I do struggle with how palliative care and end of life care will look. As I strive to organize everything around me and at some point I know ultimately I will have to trust in the process.
BR
CEB
Hello @ce1b
It sounds as if you are getting into a good mind-set to deal with this unexpected diagnosis. I never had symptoms of NETs before they were discovered, and I was quite active as well. It is a shock to find your healthy lifestyle turned upside down by a cancer diagnosis.
As you mentioned the impact of hearing your brother's best friend dying of cancer, I would encourage you not to think of his journey as applying to you. It can easily sway you from a positive attitude and positivity goes a long way when you are dealing with cancer. Remember, every cancer is different as is everyone's treatment plan. His journey does not have to be the same as yours.
I see that the tumor board will be meeting on Oct. 12. Will you get the results of their consult soon after that?