Connect
← Return to Undiagnosed Autoimmune Disease - No one will listen to me
Discussion
Undiagnosed Autoimmune Disease - No one will listen to me
Autoimmune Diseases | Last Active: Jan 24 3:56pm | Replies (173)Comment receiving replies
@lexaprobiotic You sound like so many who are struggling with an undiagnosed autoimmune condition. Since you can’t diagnose yourself, start keeping a symptoms journal. Include every symptom, when it started and what triggered it. Anything you can think of.
Also, you might look into major medical centers or university/teaching hospitals in your state. They are more up-to-date with research and treating unusual cases.
There are good articles about why women are often ignored and what you can do about it. (I had one, but it doesn’t have a link, so I couldn’t put it on here. The best thing you can do is to advocate for yourself. Educate yourself and be prepared for every visit. I know you can do this!
Will you stay in touch with the group and let us know how you’re doing?
Replies to "@lexaprobiotic You sound like so many who are struggling with an undiagnosed autoimmune condition. Since you..."
Connect
Hi
My name is Darcy
Feel like my story could piggyback yours
My symptoms in the last two years have morphed from Neuro, RA,
Ulcers in mouth
Root canals, itchy skin, lethargy, now Gastro
Again... Symptoms
1.5 years ago I was put on Short term disability at work
My symptoms were carpal tunnel like. When I asked the Dr if surgery would help, he said no. Even though it was being suggested. At that time I started a new path
I cut out all Alcohol and Pharmaceuticals. I went back to basics
How I was as a healthy kid before I chose unhealthy habits and made excuses for them all
Proper nutrition, excersize, sleep, and work
Prayer, fellowship with like minded people
Rest
Everything in moderation
Balance
I'm not there yet but have managed to get better. My blood work has improved w/ time
I journal everyday
People places and things
Lymph drain massage therapy was a key part of my recovery journey
Our central nervous system and connective tissue is key
Electrolytes
I'm a server in a restaurant
Just another person trying to survive