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CLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: 2 days ago | Replies (308)Comment receiving replies
@dustymi11er
Oh, Graeme, it’s great to hear from you! I’ve been away from Connect for awhile. My mother died and I’ve been in Washington, DC. Mycophenolate is a good drug but you have to carefully watch your timing. The medicine needs to be taken 1 hour before eating or 2 hours after. Some days i go crazy figuring out the timing, but the medicine works, so…
Have you talked about osteoporosis with the doctor? It’s a major side effect of prednisone therapy, so you want to catch it soon.
We have some new members in this group and your experiences with clippers will be very helpful for them so please stay in touch with us. Will you do that? Becky
Have you been able to return to work or school?
Replies to "@dustymi11er Oh, Graeme, it’s great to hear from you! I’ve been away from Connect for awhile...."
I know full well about the many side effects of pred, inclucing osteoporosis. Since I need cane/walker/wheelchair, all you will get from me, at this stage of life, is an eye roll. I do chair yoga and ride a recumbent bike.
Luckily, I do not work since I am retired. CLIPPERS forced early retirement on me. My husband is fairly understanding about all this, but it seems to grate on his nerves at times. I try as hard as I can keeping the place clean, luckily it is small. He is a superior cook, yay!
My English correspondent, Bill Crum, has been on azathioprine for a decade. He is monitored closely. His blog is Living With Clippers.
I am sorry about your mother's death. In my family, all men are dead by 70 (!!!) and some women live to their 90's. Sheesh...
I was on Cell Cept once, and it made me quite sic.
liz
Connect
Hi Becky
Sorry to hear of your loss hope you are well. I wasn’t told about taking my tablet before or after eating so I’ve been taking it with everything else as soon as eating in the morning. I’ll start taking it earlier now. They also didn’t mention side effects apart from staying away from long periods in the sun so I’ll ask the question at my next appointment in January. Unfortunately I’m not ready to go back to work yet but I do feel I’m getting better regarding walking and balance. Not using my stick around the house if I can help it. You were right about it being a slow recovery ❤️🩹. My face is still bothering me which always feels wet on the left hand side. I’ve been given amitriptyline 2 x per night but they are doing very little to reduce the symptoms. Just recovered from my first chest infection since going on the medication which was scary but I’m pleased it happened as am sure there are a few more to come this winter. I’ll certainly be keeping in touch Becky this forum has really helped me understand it’s not the end of my world getting diagnosed with clippers.
Regards
Graeme