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I’ve had that exact experience! I did lose vision in my left eye eye 3 times. Each time it lasted for about 1/2 hour.
My eye doctor sent me to the ER with his notes. He wanted me to be given high doses of prednisone.
I went to the ER. I gave them his report etc. They didn’t do anything but a CT. Actually, they kept me overnight but didn’t give me prednisone for 6 hours after I got there.
All my tests were normal including an MRI even though I had all the symptoms of GCA. Headache, sore scalp, face pain etc.
They sent me home. The hospital neurologist said he was unsure if he would recommend a biopsy of my temporal artery. (he should have)…
I still have all the symptoms of GCA. Not one test including the biopsy I did have shows it. Everything is “normal”.
My Rheumatologist at Mayo Scottsdale has ordered MRIs specific for arteries. Hopefully it will help.
Currently, I’m on 35mg prednisone. I can not lower the dose without feeling very sick.
Very frustrating!
Replies to "I’ve had that exact experience! I did lose vision in my left eye eye 3 times...."
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The thing about the biopsy is, if it's positive, you've hit the jackpot for treatment. But they can also come up with a false negative and often do. This is because the cells are random, and if the piece they take out for the biopsy doesn't happen to have a cell in it, it looks like you're negative for GCA. Hopefully, you'll get the straight goods with the MRI. You're lucky you have access to it.