← Return to Non-Length Dependent Small Fiber Neuropathy

Discussion

Non-Length Dependent Small Fiber Neuropathy

Neuropathy | Last Active: Oct 4 4:36pm | Replies (131)

Comment receiving replies
@rnlorena

@exitframeleft. I have been to the Houston area many times because I had family living there. I have a brother who lives in Boerne Texas outside of San Antonio. I am gonna check out your Dr. to see if I can get an appt. I just want a fresh face. I want as much information as I can get. I did check my insurance about second opinions and they said yes. Its about a 9 hour drive for me but I have done it many times and I like driving so that's good. I wouldn't mind finding a cardiologist that is familiar with SNF but I am doubting that, but you never know. I don't think it is coincidence that this has happened. I think it may be connected to the shot but I am not sure if they have a way of telling that. I read somewhere that people were sending their blood to labs overseas to check it. I have a syrinx in my neck and it is tiny and the neuro did a MRI of my head and neck but they didn't use contrast. Syrinx is a fluid filled area that can be big or small in your spinal cord. It can spread and it can be more than one fluid filled area and it can cause major problems for people. Of course those are not suppose to be there. They mostly find them when people are in car wrecks and they do scans to see if anything is wrong. I have lots of questions with one of them being--What if you were diagnosed before SNF with things that can affect you if you have SNF. I am curious and want to know things. I took care of a lot of diabetics who have had neuropathy. But in my entire nursing career never heard about SNF. Another question would be since mine started I have had pinpricks that come and go whenever they choose and I have a burning sensation in my left hand that also comes and goes. I also have the heart issue. PSVT. I have since been diagnosed with diverticulosis and the Dr thinks I also have IBS. I was anemic last year and I am again this year. I took the medication for that and my blood was good until March of this year and again I am anemic. I go to the Dr. the end of October and I will see my bloodwork again. If I am still anemic I am getting rid of my doctor. I simply told her that I took my iron last year with the other Dr. seven days a week and this Dr. told me to take it 3 days a week. When I brought that up she said It doesn't matter if you take 7 or 3. I thought I was gonna lose it. That makes no sense to me. I started taking it everyday. So if I am anemic I will be going to a blood specialist to find out why. In March it will be one year since I had the pinpricks. I don't think it is a coincidence that the pinpricks started after the shots then the heart issue.
You said you have Crohn's. I have had other gastro issues and I wonder if that could be the cause.

Jump to this post


Replies to "@exitframeleft. I have been to the Houston area many times because I had family living there...."

@rnlorena Your intestinal issues may very well be tied into it. I hope you can get answers that provide guidance and relief.