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Hello
A few years ago my gyno said i had lichen planus treated it and forgot about it. My newest gyno never noticed anything.
That was unfortunate bec i actually have lichen sclerosis which apparently has been festering a long time. Untreated it can turn into squamous cell cancer.
My dermatologist left her practice in july. She asked if there were any other skin problems i wanted to discus before she left.
I had her look and watched her shocked face. I immediately went on clobatesol the same as with lichen planus. That was followed by tacrolimus ointment. There is definite improvement but its something that doesn't go away.
During the last appt i had the dr told me of two vulvar centers. Never even heard of such a thing.
Over the last year or two many of my drs have left for other opportunities or left medicine. It takes many months to get appts. So i am on my own fow awhile.
Wishing you all the best.
Replies to "Hello A few years ago my gyno said i had lichen planus treated it and forgot..."
Posting this in Reply to your comment in hopes it may be of some help...
"In reply to @roch "If you have not seen a specialist, I suggest you talk to someone about options. Mayo..." + (show)
Hope this isn't reaching back too far to you to respond to your Sept. 28, 2022 post.
I have just had laser ablation surgery (Feb. 8, 2024) and without going into specifics yet, wonder how your 'journey' with lichen sclerosus (LS) has been, as this has been with me for 40+ years, and has led to this current precancerous condition (VIN II/III) that necessitated this procedure, and must be followed every 6 months for 5 years. I've been following the LS condition regularly with each GYN I've had along the way, having lived in many locations across the country.
I read (in scientific journals that I can access, along with the NIH and Am. Can. Socy sites), that it has a high recurrence rate (the VIN level) - of up to 75% - even within the first year after the first procedure. LS is a life-long condition, very poorly known in the general population (esp. among women), and yet can lead to this serious state of being precancerous. Obviously I hope it doesn't ever go beyond being precancerous.
Hope all is well."
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I too have been diagnosed w lichen sclerosis. My dr told me to use clocatsol sparingly bc it causes tissue thinning. I try to use only when burning and itching are intense. I have noticed now a shrinking that has me very concerned.
Thank you for mentioning the tacrolimus ointment. I’m about to make an appointment so I’ll mention this .