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High or Fluctuating Chromogranin A Level: What does it mean?
Neuroendocrine Tumors (NETs) | Last Active: Jun 18 3:39pm | Replies (184)Comment receiving replies
Dear all, I was diagnosed with NET in 2017. Low grade. Non functional and asymptomatic. Until last year, my chromogranin level was well within the normal range. Yesterday my doctor asked for a test and the result came so scary. 954. My gallium PETCT shows some increase in activity in the liver but this high chromogranin shocked the doctor as well. Has anyone experienced such a drastic increase within a year? Any comments about how to interpret this? It gives me sudden scare.
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@fightinghopefully, I can understand that this would have you concerned, especially if your doctor appeared shocked as well. Several members have reported high or drastically fluctuating chromogranin A (CgA) levels. For this reason, I moved your post to this discussion that @kaforester3 started:
- High or Fluctuating Chromogranin A Level: What does it mean? https://connect.mayoclinic.org/discussion/chromogranin-a-level-was-539/
I did this so you can read previous posts and connect easily with fellow members like @tomewilson @tdalton61 @microbe1943 @musicflowers4u @dbmenger @tracyfurtiscaudle who have experienced high CgA results.
A high result can be caused by several factors. As others have shared, medication can be the cause or conditions of the test or where you had it done. Have you started any new medications lately? Has your doctor ordered to have the test done again to see if it was an anomoly? Or further tests to rule out recurrence?