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Anyone have experience with anal intraepithelial neoplasia (AIN)?
Colorectal Cancer | Last Active: Oct 12, 2023 | Replies (24)Comment receiving replies
Hi, well I'm 42 with 3 boys. My 23 year old is in Japan as he is a United States Marine, my other 2 are twin 17 year olds in their senior year of high school. I'm married and work as a data manager. 2 years ago I was diagnosed with VIN3 and had to have surgery to remove it. 6 months later it came back and I had to have surgery again. This time it has moved and is AIN3. My colorectal surgeon wants me to use topical treatment but my gyno oncologist and my gyno both told me previously that for stage 3 it doesn't tend to work and most people don't use it correctly because it burns and hurts. I am getting a 2nd opinion on treatment but I was wondering if anyone knew what other treatments there are so I know what to ask. The Dr said surgery is not an option as it involves the sphincter muscle. I have tried to research it but it's all centered around HIV+ men who have it and I am not sure if it's different for women. I already have sexual issues from the VIN surgeries and just really want to make the right decision. Thanks for listening.
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I just finished chemo radiotherapy for anal cancer (it will be one week on Friday). My cancer is stage IV with lymph node involvement, so this was the only treatment option. It is very painful, and I was only able to get the first dose (4 days) of chemotherapy, because of adverse reactions (wbc, platelets, hemoglobin all dropped dangerously, & liver functions… dangerously high). For me the only other option was a radical surgery with permanent colostomy, which they do if treatment fails. You are in an earlier stage, thankfully. I would ask what your options are, & which have the best outcomes for curing this at this early stage. I don’t think there is a difference in treatment for men or women. I wish you the best of luck.