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That exact thing happened last Saturday. I went to the ER. The ( very arrogant) dr. Was the worst ever. He told me I was being rude and turned his back and walked out. They said they called my rheumatoid dr who said I was not. Patient. I left the ER with nothing but a worse headache and crying. The security guard was astonished at the treatment I received.
I’ll go to a different ER if this happens again, but my blood work keeps coming back normal, if not low.
This pain is not in our heads. I’ve been through therapy. Yes, I’m certified nuts 🤪😂 ( aren’t we all ) but to suggest that this pain is not real is just ridiculous.
How are feeling this week? I do hope you are enjoying your weekend. Thank you so much for your advice and concern. Sometimes it feels like no one cares. 😟 When Drs give up looking, where do we turn? The internet. I’m so happy I found this supportive web site. 🥰
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I’ve had that exact experience! I did lose vision in my left eye eye 3 times. Each time it lasted for about 1/2 hour.
My eye doctor sent me to the ER with his notes. He wanted me to be given high doses of prednisone.
I went to the ER. I gave them his report etc. They didn’t do anything but a CT. Actually, they kept me overnight but didn’t give me prednisone for 6 hours after I got there.
All my tests were normal including an MRI even though I had all the symptoms of GCA. Headache, sore scalp, face pain etc.
They sent me home. The hospital neurologist said he was unsure if he would recommend a biopsy of my temporal artery. (he should have)…
I still have all the symptoms of GCA. Not one test including the biopsy I did have shows it. Everything is “normal”.
My Rheumatologist at Mayo Scottsdale has ordered MRIs specific for arteries. Hopefully it will help.
Currently, I’m on 35mg prednisone. I can not lower the dose without feeling very sick.
Very frustrating!