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Vibration, twitch and pain

Brain & Nervous System | Last Active: Oct 13, 2022 | Replies (11)

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@tkeyler

Hi Rachel,

Started plaquenil and need to figure out the anticoag portion - still on eliquis, but warfarin recommended. I too have had very extensive blood work done, but nothing abnormal found other than the IgG and IgM cardiolipin antibodies. I also had EMG done (not pleasant) at Mayo and it was normal. Had brain MRI (normal) but multiple people now have recommended skin biopsy - will bring that up at next appt. I meet with cardio on Halloween, ophthalmology in middle of Nov, then again with neuro to discuss the genetic test results shortly after that. Yep, first meetings with rheum and neuro. Been digging into the primary lit, and see there are neuro complications with APS - will paste with this post.

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Replies to "Hi Rachel, Started plaquenil and need to figure out the anticoag portion - still on eliquis,..."

I see that neuropathy is a complication. It's good you are seeing a Mayo Clinic neurologist soon enough. I know waiting is horrible, more time to overly research and drive yourself crazy. At least that's what I used to do anyway. 😉

In the mean time, how are you staying active? What type of exercise do you like to do? Sore muscles, tingling and twitching may make it difficult, but stretching can help. Do you stretch at all?